So I called her the other night because Christopher has been telling us that he has been seeing colored lights for about two months now. We noticed it first at night when he was laying in bed, but lately he's talked about the lights when he is up and playing. They don't seem to bother him, he just wonders if we can see them. I asked him the other day why he thought he was seeing colored lights (they change colors apparently... green, red and yellow). "I think they are baby fire flies. Yes, that's what they are mommy, baby fire flies." (I love a 3 1/2 year old world!) Honestly I haven't been too concerned about him seeing the lights, but it was an episode on Friday that prompted a call to my mom.
On Friday afternoon after Christopher awoke from his nap I carried him downstairs and sat him on the couch. I promised he could have a brownie once he got up so I got the brownie and a napkin and gave it to him. He immediately dropped it and said he couldn't hold it. I tried to give it to him again and he dropped it again. He was starting to get upset b/c he really wanted to eat his browie. I tried his sippie cup next. Coudn't hold that either. "Squeeze my fingers, Christopher." He couldn't do that either. Both hands were essentially useless. Crying he pleaded, "Mommy, help my hands feel better." This went on for about 20 minutes.
Last September we took him to a pediatric neurologist b/c he was complaining that his hands tickled. The doctor examined him, "played" reflex games and said Christopher was fine, just verbally advanced for his age and extremely talkative--he just loved to volunteer information. He indicated that is was probably a normal growing sensation and that most kids his age just can't tell mom and dad about it.
Back to my conversation with my mom. She suggested we visit the neurologist again. She said it could be a number of things, and nothing, but it was worth getting him checked out. So yesterday we visited Dr. Gammeltoft again. Dr. Gammeltoft didn't seem to be too concerned, but thought the episode along with our visit in September warranted an MRI. (Funny, almost the same time last year I was having my MRI! Never a dull moment!).
Christopher's MRI is scheduled for June 11th. He'll have to be sedated (I'm already thinking good luck to the nurses in trying to get an IV in Christopher! This is my same sweet boy who screams, kicks and cries when you try to get him on the scale at the doctor's office and when you try to take his temperature under his arm!). Maybe he'll surprise me; hopefully he'll surprise me. I think the hardest part will be no food after midnight and no fluids after 9:30 a. His MRI is scheduled for 11:30a.
Let me just say that I'm not worried that Christopher has MS. I'm really not worried about anything; I'm not "wigged" out by his symptoms and I feel like everything will come back normal. People are praying already and I have a sense of peace. God has definitely given our family grace in dealing with various issues over the last several years and I trust He will continue to hold us in His tender hands in whatever the future holds.
Thanks for reading this extremely lengthy post. I'll keep you updated. If you think about it, please pray that Christopher does well under sedation, that the IV insertion process will go well, and that his brain scan will come back normal. :)
